Sharing really is caring

I really believe that sharing is caring, but the thought was brought back into my mind this morning during a Tourette's fit. They're usually directly linked to my stress level, which, with various anxiety disorders means it varies, for no reason and with no warning. Though it is usually correlated to my actual stress level. It usually goes like this:

Stress level:

1 - I don't know yet haha but pacing, definitely pacing... I never stop pacing
2 - The occasional twitch of the shoulders and straightening of clothing (the clothing thing always exists, like having clean hands and such)
3 -
4 -
5 - 3 to 5 range from stuttering, neck craining, hand twitches, foot tapping, guttural noises and clicks and the like. I usually sing during these times in order to focus on what I'm doing. In times like these I feel blessed I learned so many Earth based Pagan songs. They help focus my mind on positive things.
6 -
7 -
8 - High stress times I stutter badly and it always accompanies neck craining: sometimes to the point of such pain that I cry out. The hand body twitches become more exaggerated and the foot tapping becomes leg spasms and jerks. Yes, I admit here and now that I have spasmed into the Thriller dance on one occasion. On high pain days from the fibro, which I'll get to later, the spasms are in my back and they can take me down in an instant in complete agony.
9 -
10 - These days are all of the above with fibro nerve flashes which leave me utterly nonfunctional.

My wife and my kids know all of this because they've lived it, the poor things, as it's come about. I wasn't always this way. The onset of Fibromyalgia exacerbated what my Neurologist called "undiagnosed childhood Tourette's syndrome"  which made sense as I've been a finger drummer for as long as I can remember. To anyone on the outside it may seem odd and I know it makes situations uncomfortable so as I shared with my immediate family, I share with you my family at large.

Allow me to digress; I shared all of this in order to set the frame work for the sharing of my walk through Fibromyalgia. Also understand that I have arthritis and my knees are bone on bone, and I have some band disorder my Rheumatologist explained but I don't understand which means my hips ache and pop out of socket frequently. So knowing all of this I'll explain my Fibromyalgia. I say my because it's a host of disorders which plague different people differently. For instance it heightened the already existing Tourettete's and OCD (CDO) and brought new anxieties. My pain level is always parallel to stress changes and changes in barometric pressure. There are eighteen nerve points recognized as very sensitive with fibro and you can have any number of them active. I have all eighteen points active at varying levels of sensativity which correlate to changes in stress, movement, overall health, mental state (which is a real Bugger) and others. They can also just heighten for no reason. Mine are as follows:


1 - My back (4 lower back and 2 upper back at the base of my neck) and my right knee are sensitive though I'm rarely at this pain level with a cognitive mind. Mild headache. I creak like the rigging on an old sailing ship. Extreme discomfort as though I just can't get comfortable.
2 - Back, knees, headache at the base of my neck.
3 -
4 -
5 - Again from 3 to 5: Back (all points from this point forward), knees, elbows, ankles, feet (at the soles), hands, headache complete head mild migraine symptoms, clouded thinking, IBS, lethargy, loss of appetite, muscle spasms in my back and sometimes in my leg, The leg ones I walk out because I pace, the back ones are all day long twitches. If I sit down for too long they lock up and cause the points in my back to hit a 10 in pain. I have sat through one full movie with my family in four years.
6 -
7 -
8 - You know the drill: Extreme lethargy I'd liken to my worst bout of the flu (when I had pneumonia) extreme body and joint pain (my hands are swollen clubs), my knees feel like they're filled with broken glass, the foot pain is like a hot coal on the pad while the foot remains extremely cold with swollen joints, migraine headache, clouded thinking, grumpy, Anxiety bouts with shrieks at loud noises and flinches at sudden movements, IBS from the very bowels of hell,
9 -
10 - They blur into one and it's all of the above with inescapable agony that writhing in the fetal position won't comfort. Nothing helps; there is no place dark enough, soft enough, warm enough, cool enough... if I could be suspended in air I couldn't find comfort and I feel like I know how the Earth must feel moments before magma becomes lava.

So I tell my family and close friends what my pain level is at. I do so because I have no sores, no open wounds which are dressed, no outward signs really other than my permanently dark eyes to alert anyone that I am sick. I am sick.

I am sick.

It has taken me so long to simply admit that. I have fears of hypochondria so I am very stubborn about being sick. I have been sick for as long as I can remember. I have grown a strong dislike of doctors and western medicine in general. I has taken me a long time to become medicated again though my life is MUCH better being so.  I was told at my last doctors visit that I am maxed out on Lyrica and Cymbalta; lovely. I have to fight what I assume (yes I assume) is the doctors view that I'm just after some pain medicine like percocet or something. I don't want that. I really dislike the feeling of those pain meds. I don't drink to the point of feeling "off" and I don't like that no matter what I take, prescription pain meds, I feel that way. I am a medical marijuana patient. I have been for two years. The amount of pain relief is directly in my hands. The type of relief is under my control as well. By using different types I directly address what I hurting or wrong. I can remain functional and believe me it has saved my marriage because I'm no peach to live with. My wife is a Saint for putting up with me, truly.

I wake up groggy and I go to bed wide awake. I pace all day so that when I go to bed I'm exhausted and I'll sleep as still as possible because I don't want to ruin Rose's sleep. I still sleep restlessly and the points on my back have caused us to cuddle much less. I really miss that physical contact. To explain my back; have you ever had a broken or bad tooth? Where the root was exposed? Where just the slightest breath inward was felt and it could surge to a burning pain at the lightest touch? It's like my lower back is a mouth full of broken teeth. The Lyrica and Cymbalta keep the pain at about a high discomfort level. My family know where to hug me safely, others I keep the pain within; it's worth it for the physical contact and exchange of love. After the hug, which usually ends with a pat on the back, I smile and excuse myself to go walk off the pain. I will not miss out on a hug, and if you're reading this and thinking of hugging me less, even one hug, please please don't. Please don't withhold, I am a hugger. 

I meditate in the morning to offset the lost sleep. I try to meditate a couple hours a day between sitting Shinay and walking Shinay. I open my shrine in the morning which consists of chants which set my intention in the right direction, offerings of saffron water and candles and incense when I have it. I center myself through this process. I get the coffee going and get my family off for their day. I ask them every day "Did you get enough sleep? Did you get enough to eat? Are you going to have a good day?" We play fun music. My youngest son likes Stevie Wonder's "Sir Duke" especially and I love the way he sings it in the morning. After they're off I will come home and medicate and walk out the cramps and spasms. About Noon I'll be able to get out and about to run any errands. I recently got a handicapped parking placard. I thought I wouldn't use it often because as we parked in the past I had thought about getting one and assessed if I would "need" to use it. That assessment was flawed though because it was from the perspective in which parking there wasn't actually an option. I use it a lot. I walk with a cane for a few reasons: my knees; they won't do a knee replacement until I'm in my 60's with the lack of insurance I have. So I'm using what I have wisely and walking with a cane. It's also for my back. My right hip is what I would describe as "soggy" it doesn't hold my weight during a stride. So, the cane helps a lot even though I really dislike it. My skin is soft and thin now. When I look down I don't see my Dad's hands, I see my Grandpa Hope's hands. That's ok by me, he was a great man, but it's a little early. I'm not yet 40. I digress yet again (fibro fog) I'll go get the kids from school around 2:30 and leave again around 5:45 to get Rose from work. We'll get dinner figured out and I'll cook or help cook depending. I'll get Rose off to bed, then the kids, and I'll pace out all the pain and anxiety from the day (even though I do it throughout the day) and exhaust myself around midnight and fall asleep.

That "day" will fluctuate depending on the factors I listed and I have no retreat from my day. I cannot fail my family. I feel horrible as I am no longer the provider for me family, while at the same time I have enormous pride for my wife and how she's blossomed under this. As my body crumples up on me I struggle with depression (fibo add-on), I am unemployed and most likely unemployable, I can't work hard around the house... hell I barely keep house. I manage to taxi my family and remain an emotional support. It's all I have and I give it all.

I'm sharing all of this because I am sick, but I am a human being. I believe we need to open the dark corners, deal with them with the strength of our family. We need to dispel the thought that we should somehow be ashamed of our bodies, of who we are. We desperately need a coming together. I share because it is caring, caring that maybe this will reach someone who needs it on a day they need it. Gifts are given without thought of reciept, or they should be and I believe your very presence is a gift unto the universe for us all to share so make it the best you can give.

Imagine. Everyone, everywhere being open and giving, understanding and nonjudgmental... We have to be the change folks and this is my humble contribution.

Come on People now, smile on your brother

Yesterday my wife, my eleven year old son and I were almost in a head-on collision. A heavy duty truck, which looked like a cement mixer, belonging to an environmental service company was straddling the double yellow center line around a blind corner.  The look of shock on his face as we came around in our lane truly frightened me. His truck was too large, too heavy and moving too fast for him to maneuver at all. I swung my car to the curb on my side and came to a stop. He missed us by inches and …. just kept going. He just drove off. I took the next block and backtracked. I was extremely upset. I wanted this jackass to know what he almost did. I found him two blocks up about to make a right on the street I was on and as I passed him I yelled, cursed and told him to pull into the nearest parking lot. I know. It was a stupid thing to do. I was caught up in moment. The problem was my initial approach.

When he didn’t pull into the lot but instead taunted and goaded me with his passenger as he kept driving I decided to take this to his boss. I knew where their office was, we used to work in the same office park. I hope he received a written reprimand. I plan on following up in a few days, but that isn’t the point of this, it’s about how we treat each other, about our initial approach; our combined consciousness.

You see all of us enter our isolation booths and maneuver through our city avoiding all the jackasses on the road without ever realizing that those jackasses are approaching it the exact same way. Where did this sense of entitlement come from? When did all of us decide that our city, government, country, the world, all of existence was there to witness the “me show”? How do we figure we are the only important one?

Well with that attitude fell our cooperation, our compassion, our willingness to do what is right. What we adopted was the willingness to do what is right… for me. We disconnected from each other and started to take care of only ourselves. We drew lines, like we always have throughout history, in order to set ourselves against them to make it easier to excuse our behavior to ourselves. It’s competition; on the roads, in the office, in the community in the home. I’m all for doing the best you can and felling good about your accomplishments but when are we taking care of the most important aspect? I mean sure, we can be the best on the road, the best in the office, and the best in the community but if we’re not tending to our initial approach then all we end up with is a trophy shelf we admire alone. No one, I mean no one, wants to be taken advantage of; not on the road, in the office, in the community or in the home. So when did we flip and change to this me only approach? More importantly, why haven’t we noticed and done something about it?

We treat each other like enemies on the road, we have “road rage” which doesn’t come from congestion, it comes from our mindset. If they’re enemies then there are no holds barred. We drop polite society and “handle our business”. I call bullshit. I don’t want every other motorist on the road to treat me this way, then without being a massive hypocrite, so I cannot take advantage. I must follow the rules we have all agreed to.

We approach all of life in this same way. It’s been going for so long. I grew up in this mindset. I was a child in the 80’s during the “me generation” and boy isn’t that the truth. We were taught to take care of “No.1” and a bunch of other catchy slogans we would repeat to desensitize us from the usury we were being bred into. We did as every generation does, we improved upon the existing system. The improvement? “The Game”! It’s where I can act like a complete asshole and then excuse my behavior with the slogan “don’t hate the player, hate the game” which is tantamount to saying “don’t blame me, I’m no worse than everyone else”. That’s just great, lowest common denominator societal norms! How did we not notice we were circling the drain? How did we all adopt this philosophy so quickly? So easily? I mean it started in a subculture, as all things do, and went mainstream so quickly. Then came the “haters” and how we don’t have to listen to anyone, because haters are going to hate. What a giant system of self-delusion. That means I can be however I like because I only have to be better than those I judge to be less; which is to say I can do what I want because I can always judge people in such a way as to allow my bad behavior. Then, when I piss people off I don’t have to listen to them because I can just label them “haters” and dismiss them. It’s the recipe to complete deluded pseudo-happiness.  All of that outward manipulation causes us to live within ourselves and use our bodies like a robot. All the hate from the haters just hits the robot and doesn’t get through…. and neither does the love, neither does the happiness… nothing does.

So here we are; a world of people hiding within themselves and all of them missing out on life. It’s messy, you will cry, you will love and you will lose and all of it is the experience you were meant to have. There is no hiding from it, there is no broadcast delay in which you have a moment to factor your next move, nope. You act, you live, you learn, you grow, you give of yourself and you pass on. If you’re one of those lucky beautiful souls you touch the world with your honesty.

I am saddened by how many beautiful souls I meet who insist on remaining caterpillars.

Come on people now
Smile on your brother
Everybody get together
Try to love one another
Right now
Come on people now
Smile on your brother
Everybody get together
Try to love one another
Right now
Come on people now
Smile on your brother
Everybody get together
Try to love one another
Right now

The Yougbloods

Effects of Isolation

Effects of Isolation

I was mentioning to my wife the other day about how the biggest red flag of how our society has degraded is how we all drive. Each day I see more and more people running stop signs, running red lights recklessly and turn arrows as well. There are several areas around town where, in a double turn lane, people will try to merge lanes as soon as they turn in an attempt to avoid a) missing the light or b) to avoid the long line of people waiting in the correct lane. I see residential areas where no one drives the 25mph speed limit we all know is in place in residential areas. I’ve had people become irate and drive aggressively when I do the speed limit. I feel it’s a big problem and a sign of a larger one.

We all know the rules, or we should if we hold a license to drive. Not many are following the rules. Some are outright breaking them; others are bending them because others are breaking them. It’s like all we need is an excuse to act worse. For me, that excuse was turning our cars into isolation chambers. We isolated ourselves from the “noises of the road” which seemed like a good idea at the time yet it seems we were too weak to still reach out to our fellow human beings. It set the dynamics of us vs. them. How did we miss that? I feel because it was the 80’s, the me generation. I feel we can see clearly the problems with this.

We can’t set every other vehicle on the road as an opponent and expect cooperation and community to spring from it. How can we be surprised at the results of the dynamic we, as a society, set in place? We decided that the individual was more important than the community they lived in. Since that time many of the policies set in place at that time have proven faulty. Remember “trickle down”?

So the time is now to break out of this, to consciously decide to come together. We have a beautiful country, a beautiful community if only we could stop to see it. If only we could put our greed on the back burner for a moment and see what we are all entitled to, what we could all have if only we could share and not hoard. I feel we swung the pendulum too far too fast. We’ve swung from letting the government do it’s own thing, from telling corporations have the right to “vote” back to the “99%” taking back the power. That won’t work folks, it won’t work. Just as we didn’t want “them” stripping our possessions from us, “they” don’t want us taking all their wealth and “redistributing” it. They won’t recognize that they gained it through oppression and we won’t recognize that we wouldn’t want to be treated the way we’re treating them.

Man, it’s time! It’s time to stop the petty bullshit and get it together already. We are in the twenty first century for god’s sake! It’s time to get it together. It’s time to drop where the problem sprung from; greed, and instead choose generosity. It’s time to be gentle with each other. It’s time I was part of the beautiful and diverse society I saw each morning on Sesame Street; the one where we all got along; where differences were chances to learn about each other, not to be shunned.

It is time to be the change…. That means be it without looking back, without waiting for everyone else to, without being weak and becoming greedy just because someone else is.

It’s time to love, to build together, to come together and respect each other. 

Compassion & Community

They say when Buddha realized it was like 84,000 doors opening... I like to think that those doors are the various paths we all take to the same end and when you become you are at one with all paths, at one with your brothers and sisters. You can see the flow of karmic energy which pushed and shifted you also affecting your fellow human beings. I believe this is why the practice of compassion is so important. Unless you can swing the same result by sitting beneath the Bodhi tree and completely rearranging your mental state, we all must consciously practice compassion.

We start out pure and innocent, from one point of view. We have innate perfection always no matter our state from another point of view. I can see where they’re both coming from, I believe. It’s “original sin” from one place and the effects of samsara from another. I can see how they’re both correct, I believe. All religious paths are teaching the same basic thing. You can see the truth hidden in the dogma. Each of us has the responsibility of holding our souls to truth. It’s all too easy to “follow” a church and give away your free thought. Free thought and questions aren’t generally looked favorably upon within religious organizations. Free thought threatens the control.

Right now, free thought and difference of opinion are met with outright violence from our country. Sure, you can say it’s “them” but that is just disassociating yourself with your fellow man. Nope! The way forward is together, it’s with our arms around the shoulders of our brothers and sisters and working for the good of all.  It seems a hundred years ago our country took a perspective of “restriction” as the road to civilization. I disagree with that precept. We cannot have our laws, our government, our very lives set to restrict. That is a “punish the good with the bad because we “have” to” approach. All that has done is made those good people who are screwed by the rules cease to follow the rules. I doubt the number of criminals corrected through this type of government can even be 1/100^th of those who now disregard the rules and take care of only themselves. Don’t agree? Go out into any town and drive around for a couple hours. Count the number of people who follow a four way stop correctly and not just “I was here second, I GO second”.  Drive on the highway and see how you’re treated. Remember to leave your own personality at home so you can stay objective.

We go from one isolation booth to another throughout our day. When was the last time you heard a siren before you saw the vehicle? We isolated ourselves from the road and, unwittingly, each other. The same is true with the way we work. Do you remember when having more than one job over two years would get you declined for a job? Do you remember when you knew the names and numbers of every man on the team? Before free agency? Do you remember when teachers taught instead of worked to not get fired? Do you remember when you felt good about your government? For me, it’s been a while and I want that feeling back.

I feel we’ve focused on the individual as a solution to the problem of the 50’s oppression and close minded attitude. Where a man was a man a woman was in the kitchen. It was wrong, but we didn’t address the reason, we sought to restrict. We restricted speech and brought about political correctness. All that did was cause the sexist, racist, bigoted attitudes to be hidden. We didn’t go to the root of the problem and address it. For each evolution of society a new mode of restriction was born. Einstein said that doing the same action repeatedly and expecting different results is insanity and I believe we’re all insane. We haven’t figured it out? The problem isn’t “them” it never was, it was “us” all along.

There is no one simple solution. There isn’t anything one person can do to change it for everyone. The solution lies within the hearts of every living being. We have to be the change before we can expect to see the change. We have to do what is right just because it’s right. Not because God is watching, not because we will get thrown in jail, not for any other reason other than the joy in my heart demands it.  If you could manage to strip all your paper-doll personae, from the moment you realized you were separate until this moment, perhaps you could see that joy in your heart. You shared willingly, you gave without thought of return, and there was no ownership and no religion. You didn’t have any shields then to protect your psyche against the repercussions of your own bad behavior. There were no justifications. If you were bad, you knew it and your friends let you know.

We all long for simpler times and leave it at that. We’ve given up and only those ruthless among us, those willing to hold out longer, have come to power. They don’t have our best interests at heart because that was not what drove them to excel. We have no one to blame for our mess, we are to blame. We let other people doing bad things change our ethics to where we just had to be a notch above them in order to feel superior. It’s all a lie and we know. We knew it then too, we chose the lazy.

It’s time, isn’t it? Haven’t we all had enough? All I want is to love and be treated fairly and I believe that is really what we all want. When our motivation is greed, and it certainly is in the world today, we have to take from another to have it for ourselves. This is wrong. We know it; otherwise we wouldn’t be driven by fear of losing what we have.  I’m tired of living in fear. I’m tired of seeing the faces of my brothers and sisters as they have to go against their nature to follow the “rules” when we know it’s wrong. Such as when we deny medical help, social help and so on. We shouldn’t be choosing money over truth and humanity. When we sacrifice our fellow man for our own gain we know it is possible for someone to do the same to us; enter fear and we are driven by it ever more.

We have to do what is right just because it’s right. We have to put the work in to see the benefits. We’ve grown into an instant-gratification society and it’s just wrong. When you work for something you appreciate it more; that is a truism. So why aren’t we moving forward that way? Why aren’t we putting the work in? We may say “we are, we go to church” but are you holding yourself responsible for the total effects of your life? Or are you putting the responsibility squarely on the church? It’s easy to use it as a shield and only you can know if your every effort is coming from your most sincere heart. Do you go to church for salvation or to lend your positive presence to the congregation? If it’s the first all you are is a taker and then when to you give back?

Pay it forward by being a good person, treat everyone fairly, practice compassion, patience, understanding, tolerance, and so on. When we live those ideals they become … we’ve been living the ideals of greed and possession and it has become & we’re all suffering from it. It’s time to change. It’s time to go inside and do some spiritual housecleaning. It’s time to be humble, be a good person and let what will be, be.

Namaste